Almost all patients with Spina Bifida will require lifelong antibiotics to prevent infection. These children need major surgery to be carried at some stage during later childhood. This is usually between 7 and 10 years of age.
Once upon a time — not so very long ago — there were few doctors outside the ranks of pediatricians who treated adults with cystic fibrosis, Down syndrome or spina bifida. Most died in childhood or in their teen years. Very few survived to adulthood.
From tobabies with open spina bifida were treated non-selectively from birth. In we reviewed all the survivors by postal questionnaire and telephone call. The aims were to find out how many were living independently in the community or were in open employment or drove a car.
Toll-Free U. From high-quality clinical care and groundbreaking research to community programs that improve quality of life, philanthropic support drives our mission. This Lab is designed for patients and research participants with diagnoses affecting lower-body function due to brain or spinal cord injury and diseases of the nerves, muscles and bones.
Disclaimer: This fact sheet is for education purposes only. Please consult with your doctor or other health professional to make sure this information is right for your child. Being independent is an important life skill.
The care for adults with spina bifida is an important area to study. As increasing numbers of patients with spina bifida survive into adulthood, they expect to thrive and receive the best possible care into adulthood to maintain their health. Understanding the health needs in this emerging and changing population will help clinicians provide the best anticipatory care for adults with spina bifida and continue to improve outcomes.
Spina bifida is a birth defect that occurs when the spine and spinal cord don't form properly. It falls under the broader category of neural tube defects. The neural tube is the embryonic structure that eventually develops into the baby's brain and spinal cord and the tissues that enclose them. Normally, the neural tube forms early in pregnancy, and it closes by the 28th day after conception.
Spina bifida is a congenital malformation of the spinal cord and column that, until recently, was known chiefly as a pediatric disability. Due to advancements in medical, surgical, and rehabilitative care, the number of adults living with spina bifida is increasing. The UPMC Adult Spina Bifida Clinic provides coordinated care that often begins by working with pediatric specialists to ensure a smooth transition to adult medicine.